Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or 404-778-8518.
NeuroVia NV-1205 Trial: Important News
24th September 2018
NeuroVia has informed us that they unfortunately have had to put the NV-1205 trial temporarily on hold due to issues not related to either drug or regulatory actions. They are, however, working diligently to rectify the situation as soon as possible and have asked us to share with the ALD Life community that they hope to resume the trial by the end of the year. We will keep you updated on further developments.
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