New article: Progression of myelopathy in males with adrenoleukodystrophy

11th December 2018

Knowledge of the natural history of the myelopathy in ALD is paramount for evaluation of new therapies in clinical trials. The progression of myelopathy can be quantified using practical and clinically relevant outcome measures.

See the new paper from Brain Journal of neurology, by Huffnagel, van Ballegoij et al. 

Progression of myelopathy in males with adrenoleukodystrophy: towards clinical trial readiness


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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