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Study on Families with Young Children with Addison’s Disease

7th August 2018

Genetic Alliance and the Living with CAH support group have recently published a study on the difficulties faced by families whose children have Addison’s Disease and other rare endocrine conditions. The research explores the difficulties getting diagnosis, treatment and living with a rare condition which does on occasion need emergency treatment.

Click here to read the results of the study

 

Addison’s Disease (or adrenal insufficiency) can be an indicator of Adrenoleukodystrophy (ALD), and ALD Life has been working on increasing awareness of this link amongst endocrinologists. You can read more about this project here.