Lawrence Prifti

Lawrence Prifti was 7 years old when his symptoms began. He was diagnosed with ALD, adrenoleukodystrophy, losing his ability to walk soon after. He passed away in 2005, aged just 8.

His mother, Virginia, talks to ALD Life about coping with her son’s death, from keeping his body at home before the funeral, to establishing a charity in his name. She became increasingly involved with ALD Life in order to find support in her grief and to support others coping with this condition. Read Lawrence’s story here:

Lawrence’s Story


17 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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