Max Phipps


Max was 14 when he was diagnosed with adrenoleukodystrophy (ALD) and given 2 years to live. Against all odds, and defying medical explanation, that was 10 years ago.

Life “after” terminal illness brings its own struggles, which Max combats through a proactive mind and positive attitude, and with the support of friends made through ALD Life.

By raising awareness of and supporting research on this condition, ALD Life fight to improve the odds for boys whose lives are tragically cut short by ALD.

Read Max’s remarkable story here: Max’s Story


18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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