Elisa Perugini and her husband, Marco, are determined to do everything they can to help son Michele to cope with ALD. Since symptoms began aged 8, adrenoleukodystrophy has taken this 12-year-old’s ability to walk, talk and eat unassisted. Through physiotherapy, oils, controlled diet and alternative therapies, his family fight to stop progression of the condition and to help him to enjoy life as much as possible.

ALD Life provides support to individuals and families coping with ALD and AMN around the world, including Elisa and Michele in Italy. To find out how this helped Michele and his family, and to read his story, click here: Michele’s Story