Elisa Perugini and her husband, Marco, are determined to do everything they can to help son Michele to cope with ALD. Since symptoms began aged 8, adrenoleukodystrophy has taken this 12-year-old’s ability to walk, talk and eat unassisted. Through physiotherapy, oils, controlled diet and alternative therapies, his family fight to stop progression of the condition and to help him to enjoy life as much as possible.

ALD Life provides support to individuals and families coping with ALD and AMN around the world, including Elisa and Michele in Italy. To find out how this helped Michele and his family, and to read his story, click here: Michele’s Story



18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

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