NeuroVia NV-1205 Trial: Important News

24th September 2018

NeuroVia has informed us that they unfortunately have had to put the NV-1205 trial temporarily on hold due to issues not related to either drug or regulatory actions. They are, however, more…

Impact Survey 2018 now open!

10th September 2018

The ALD Life Impact Survey 2018 is open from now until Monday 29th October We would really appreciate your feedback on our services and on how you and your family cope with ALD and more…