Zaki’s Journey – part 2

23rd February 2018

Zaki was admitted back into Great Ormond Street hospital on the 15th January 2018, which will be his and his mum, Carlie’s new home for at least 6 weeks- Zaki had lots of assessments more…

Zaki’s Gene Therapy journey

31st January 2018

Zaki was one when he was diagnosed with adrenoleukodystrophy (ALD) in September 2015 due to his Uncle Billy being diagnosed. His brother JJ and his cousin Tyler also have ALD. Billy more…