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Practical Resources

Eoryh Fuensalida IDonme bracelet
Medical Identification
Bracelet (ID on me)
Wristband (MedicAlert)
 
Public Places
Toilet Card (ALD Life) – please get in touch to order a toilet card
Public Toilet Keys (Disability Rights UK)

Facebook

2 days ago

ALD Life

European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....

Check out Genetic Alliance’s social media toolkit to help spread the word: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=a4e046029e&e=9105c...
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