Practical Resources

Eoryh Fuensalida IDonme bracelet
Medical Identification
Bracelet (ID on me)
Wristband (MedicAlert)
Public Places
Toilet Card (ALD Life) – please get in touch to order a toilet card
Public Toilet Keys (Disability Rights UK)


2 days ago

ALD Life

European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. Support the #ProtectERNS campaign by adding your signature:

Check out Genetic Alliance’s social media toolkit to help spread the word:

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