Reigan Walker

Diagnosed with adrenoleukodystrophy (ALD) aged 11 and faced with gruelling treatment, Reigan Walker is determined to let nothing stop her. Realising that she was transgender has presented more challenges as she fights for acceptance, while also bringing a sense of relief and freedom in understanding why she had always felt different to other boys. 

Read her story to find out how Reigan has coped with ALD and how ALD Life have supported her and her family.

Reigan’s Story


18 hours ago

ALD Life

We are delighted to announce that on the 15th May 2019 ALD Life will become Alex, The Leukodystrophy Charity (Alex TLC), able to support people with all Leukodystrophies, where no other support is available.

We’ll still be providing people with ALD and AMN the high-quality information, support, services and networks they already expect from us, but we want to help people with similar conditions and their families to have access to these too.

We will be sharing more information about the launch in the coming weeks, so stay tuned!

View on Facebook