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Steven Sims

Steve Sims was diagnosed with Addison’s Disease, or adrenal insufficiency, many years before doctors discovered he also had AMN, adrenomyeloneuropathy.

Most men with either ALD (adrenoleukodystrophy) or its adult form, AMN, also have Addison’s Disease, yet Steven was not tested when the Addison’s diagnosis was made. This is something he wants to change for all those diagnosed with Addison’s Disease.

Read Steven’s story and find out about his struggle for answers and his life with AMN here:

Steven’s Story

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21 hours ago

ALD Life

Emory University is looking for families in Georgia with individuals who were diagnosed through newborn screening with ALD, as part of efforts to include ALD in the Georgia newborn screening panel. Participants would be speaking with Emory University via phone or email at their convenience. If you would like to give your input, please reach out to Dawn Laney with Emory University at dawn.laney@emory.edu or ‪404-778-8518‬. ...

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