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The Corr Family

Deirdre Corr shares her family’s story of ALD, including her own symptoms and those of her two sons, Ruairi and Tom. Bone Marrow Transplants for both boys had different effects on halting the progression of Adrenoleukodystrophy (ALD).

Support from ALD Life became an important part of the family’s journey. Deirdre wants to encourage others coping with ALD and AMN to benefit from this help by sharing her story here:

Deirdre’s Story

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ALD Life

European Reference Networks (ERNs) connect patients, clinicians and researchers across Europe, to provide rare disease patients with access to diagnosis and transformative care. Support the #ProtectERNS campaign by adding your signature: geneticalliance.us8.list-manage.com/track/click?u=144770e74471b2695c19422dc&id=5e939ee3e2&e=9105c....

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