Join Our Community

 

The first Survey about the journey of patients with ALD and AMN is now available.

Go to www.ald-amn.info and download your copy!

We will be glad to receive your feedback

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ALD LIFE’ CHRISTMAS APPEAL

This Christmas, you can help ALD Life support patients and families and strive to ensure the prevention and treatment that this terrible disease deserves. Your support will enable us to continue to provide practical, emotional and financial assistance, raise awareness around these rare diseases and champion research projects for new treatments.

  • Text CURE42 £10 to 70070
  • Send a cheque or postal order to ALD Life, PO Box 43642, London, SE22 0XR

Dear all,

Gina Cousineau from BAHBAD (Be a Hero, Become a Donor) is working hard on bringing essential new born screening to California. In order to do this she needs as many blood spots as possible from boys with ALD born in California since October 1982. If you can help with this at all then please either contact Gina direct on ginacinsc@aol.com or we can pass any messages on for you.
Very best regards,
Sara