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  • ALD Life

    Urgently looking for runners to join Team ALD Life at the Great North Run. If you think you can help, please sign up today…

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    We’re working to make sure all endocrinologists in the UK start to test young males with idiopathic Addison’s disease for ALD…

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  • ALD Life

    Patience is what our families have in abundance – not because it’s a virtue but because they have no choice…

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Please read carefully!

Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) are important potential underlying diseases to consider in boys and men with primary idiopathic (unexplained) adrenal failure/Addison’s Disease where adrenal antibodies cannot be detected and there is no other obvious cause of adrenal failure.

For more information, please visit our Link between ALD and Addison’s Disease Project page. CAH is us also have some practical information if you suffer from Addison’s disease.

ALD Life Charity Appeal

Could anything be worse than losing your child? That's exactly the feeling parents with a child with...

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I can’t believe that I have been working at ALD Life for over two months now.

Last week Sara organised a staff training for us around the values of ALD Life. It was a great day and among the many things we covered it was decided that “the best solutions come together by working collaboratively with common goals and purposes.” It is so nice to be part of a team so dedicated to supporting families and getting the word out about ALD and AMN.

We have started to put together ideas for next year’s Family Weekend and are looking at hotels in London with good parking facilities.

We think it will be a good idea to change things around a bit, does anybody have any suggestions for events, workshops, talk’s etc. that you would like to see, please let us know.

We also want to have a new name for our weekend. One suggestion “ALD Life Community Conference Weekend.” Can you come up with a better name?
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