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ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. We will try and help you to become Aware, Learn and Discuss the many implications of this devastating disorder.
We want to help you take positive action against this disorder by providing up-to-date practical and medical information, personal experiences and supporting and publicising fundraising ideas and events.
All monies raised will be used to supply grants for research, hospices (a lifeline for affected families) and therapies.
Lastly, we will strive to support each other through monitored internet discussion and personal introduction.
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