ALD – Too rare for YOU to care


  • ALD Life

    Alex Hunt was born a normal healthy boy before he was diagnosed with adrenoleukodystrophy (ALD) in 2001- the inspiration behind the set-up of ALD Life…

    > Read Alex's story
  • ALD Life

    Patience is what our families have in abundance – not because it’s a virtue but because they have no choice…

    > Read why

Please read carefully!

Adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) are important potential underlying diseases to consider in boys and men with primary idiopathic (unexplained) adrenal failure/Addison’s Disease where adrenal antibodies cannot be detected and there is no other obvious cause of adrenal failure.

For more information, please visit our Link between ALD and Addison’s Disease Project page.

ALD Life Charity Appeal

Could anything be worse than losing your child? That's exactly the feeling parents with a child with...

Read More

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ALD Diaries

ALD Diaries

Zachary's Journey

Zachary who is 7, is 10 months post bone marrow transplant,... read more


Good luck Kimberley Whitehead. Kimberley is running for McCauley and Cody Riley, who were both tragically diagnosed with ALD. She's taking part in the Ron Hill Accrington 10k race this weekend.

But she needs your help - she's got only £39 to go to reach her fundraising target. You've helped both Joanne and Rebecca reach their target. Can you help Kimberley?

Please donate whatever you can: