For professionals

As an organisation supporting those with a diagnosis of leukodystrophy, we know how difficult it can be to access good reliable information. All the information we produce has been checked by specialists in the field of Leukodystrophy so you can be assured our information is accurate and from reliable sources.Our Support Services Team are available to help you support families affected by leukodystrophies. You can contact us here.

The Different Leukodystrophies

Leukodystrophy specialists

How we support you


Campaigns and Projects

Alex - The Leukodystrophy Charity